Adventure challenge update#
Adventure challenge download#

Share EDS/HSD info with correct terminology and facts from credible sources like our EDS/HSD information pages and Awareness Materials page. Tell interesting, honest, heartfelt stories. “Stop the scroll” and capture attention by including interesting, high quality photos. When posting to social media remember to:.

Adventure challenge download#

Download our EDS/HSD Awareness Challenge frame to use on your Awareness Challenge photos and share with family and friends or use the official EDS/HSD Awareness Challenge Facebook profile and photo frames.Check out our printable EDS and HSD awareness brochures and posters, as well as digital presentations, on our Awareness Materials Page.Any health professionals taking part are in no way responsible for the health and safety of those on the trip, and cannot be consulted for medical advice at any time. There will be no medical care given on the trip other than first aid provided by the travel guides. It is recommended that you consult your physician regarding any health concerns prior to registering. If you wish to join this challenge you will need to sign a liability release and provide travel insurance information for any medical or other emergencies should such arise. We provide tools, templates, tips and tricks to make it easy! Be sure to check out the ideas on the other challenge pages or photo gallery for FUNdraising inspiration, and remember that we are here to help! Participants raise funds and share their #myEDSchallenge #myHSDchallenge story with their individual fundraising pages ( create a US based page or create a UK/EU based page) and other fundraising activities. All this and more is waiting to be explored with the help of a bicycle, your expert local guide, and a specially crafted route.

Discover ancient temples, friendly villages, two rapidly modernizing cities emerging from a difficult past, and the food bowl of Vietnam: the Mekong Delta. Help raise awareness by sharing with your health professionals and family members!įew e-bike tours contain as much variety as this. Professor Malfait is challenging all her medical colleagues to join her on this adventure e-cycling across Southeast Asia in February 2020, and all are welcome to join! We have made the trip as accessible as possible for those living with EDS & HSD (please read the FAQ).

Adventure challenge update#

COVID-19 Update – January 2022ĭo you yearn to travel? Join us on a ten-day Adventure Challenge - led by our Chief Scientific Officer, Professor Fransiska Malfait - e-cycling through Cambodia and Vietnam, two very different countries yet both offering gorgeous scenery, vibrant cultures, friendly faces, and delicious cuisines.

The International Consortium on EDS and HSD.

Sponsored Resources for Living with EDS and HSD.

Affiliates, Support Groups, and Charities.

Diagnosis, Natural History, and Management in vEDS (PDF).

2017 EDS Classification for Non-experts.

A Framework for the Classification of Joint Hypermobility.

Measurement Properties of Clinical Assessment Methods for Classifying GJH (PDF).

2017 International Classification of the Ehlers-Danlos Syndromes (PDF).